Today: October 6, 2026
June 13 & 14th 2025, Paris, France The 10th International Congress of Clinicians and Researchers aims to evaluate current research efforts, present the results of the TreatWolfram clinical trial, and assess medical care. Click here for event details.
Invite only! For more information please get in touch with Stephanie@thesnowfoundation.org
Last year all known WS groups were invited to a virtual meeting to discuss the idea of creating a global awareness day for Wolfram Syndrome (WSGAD). The meeting was attended by 7 WS groups from 5 different countries. We have Rare Disease Day which encompasses all rare diseases once year…
Head to the link to listen to it now. https://youtu.be/zQ-WrsgEi3o
The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration.
P.O. Box 50224
Clayton, MO 63105
(636) 448-4134
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