Events

Saturday, September 26th, 2026, at Mercure Daventry Court Hotel, Sedgemoor Way, Daventry, England You will have the chance to speak with medical experts outside the clinic environment and to meet other families and individuals affected by WS. There will be various workshops and child-friendly activities to participate in. For more…

Join us for a great event on October 5, 2026 at Bogey Hills Country Club to support The Snow Foundation. The day will feature 10 Par 3 holes with unique hole in one contests, 4 Par 4’s and 4 Par 5 Long Drive holes, and a $100,000 Shootout for 10…

Invite only! For more information please get in touch with Stephanie@thesnowfoundation.org

Washington University School of Medicine will be hosting Rare Disease Day on February 26, 2026. Stephanie Snow Gebel of The Snow Foundation and Dr. Fumihiko Urano will deliver lectures. Patients and families affected by Wolfram syndrome or any rare diseases are warmly invited to attend, either in person or remotely.…

Join us for a great event on September 8, 2025 at Bogey Hills Country Club to support The Snow Foundation. The day will feature, 10 Par 3 holes with unique hole in on contests, 4 Par 4’s and 4 Par 5 Long Drive holes, a $100,000 Shootout for 10 Golfers.…

June 13 & 14th 2025, Paris, France The 10th International Congress of Clinicians and Researchers aims to evaluate current research efforts, present the results of the TreatWolfram clinical trial, and assess medical care. Click here for event details.