Episode #3 Wolfram Syndrome with Cathy Gildenhorn

Beth Glassman interviews her co-host Cathy Gildenhorn about her rare disease, Wolfram Syndrome.

Co-host Cathy Zacks Gildenhorn has devoted much of her life to improving the lives of others and connecting women to Jewish life and each other. She has served on several local, national and international boards. Cathy also served as presidential appointee to the United States Holocaust Memorial Council and worked on the opening of the museum. Currently, Cathy serves as editor in chief and designated spokesperson for the book, Redefining Moments: End of Life Stories for Better Living. Several years ago Cathy was diagnosed with a rare, genetic disease. Since then she has passionately dedicated her life to creating this supportive and inspiring podcast so that all in the medically challenged community know…You are Not Alone.

On This Episode We Discuss:

• Defining Wolfram Syndrome

• Frequency of Wolfram Syndrome

• Cathy’s Diagnostic Odyssey

• Symptoms of Wolfram Syndrome

• Current Wolfram Syndrome Treatments

• Research for Wolfram Syndrome

• Cathy’s prognosis

• Processing diagnosis

• CRISPR potential treatment