Events

Last year all known WS groups were invited to a virtual meeting to discuss the idea of creating a global awareness day for Wolfram Syndrome (WSGAD). The meeting was attended by 7 WS groups from 5 different countries. We have Rare Disease Day which encompasses all rare diseases once year…

Head to the link to listen to it now. https://youtu.be/zQ-WrsgEi3o

Dr. Giulio Frontino and Dr. Maurizio Delvecchio of IRCCS San Raffaele Hospital, Milan, Italy. Unified Care for Diverse Challenges: Crafting National Guidelines for WS from Diagnosis to Care. You can listen to the presentation by following the link provided. https://youtu.be/PssLjWZgsFE

Dr. Fumihiko Urano’s research updates along with Amylyx Pharmaceuticals’ update on their ongoing clinical trial involving AMX0035. It’s an incredible chance to learn more about the latest advancements in this field. Listen to the updates by clicking on the link provided: https://youtu.be/WCUNVi90EGo