Upcoming Events

6th Annual Golf Shootout, Sept 8, 2025

Join us for a great event on September 8, 2025 at Bogey Hills Country Club to support The Snow Foundation. The day will feature, 10 Par 3 holes with unique hole in on contests, 4 Par 4’s and 4 Par 5 Long Drive holes, a $100,000 Shootout for 10 Golfers. Download the flyer for registration […]

10th International Congress of Clinicians and Researchers, June 13 & 14th 2025, Paris, France

June 13 & 14th 2025, Paris, France The 10th International Congress of Clinicians and Researchers aims to evaluate current research efforts, present the results of the TreatWolfram clinical trial, and assess medical care. Click here for event details.

Past Events

Let’s Catch the Cure – November 22, 2024

9th International Wolfram Syndrome Symposium Berkshire, England 22nd-24th October 2024

Invite only! For more information please get in touch with Stephanie@thesnowfoundation.org

Unified Care for Diverse Challenges: Crafting National Guidelines for WS from Diagnosis to Care.

Dr. Giulio Frontino and Dr. Maurizio Delvecchio of IRCCS San Raffaele Hospital, Milan, Italy. Unified Care for Diverse Challenges: Crafting National Guidelines for WS from Diagnosis to Care. You can listen to the presentation by following the link provided. https://youtu.be/PssLjWZgsFE