Upcoming Events
9th International Wolfram Syndrome Symposium Berkshire, England 22nd-24th October 2024
Invite only! For more information please get in touch with Stephanie@thesnowfoundation.org
Wolfram Syndrome Global Awareness Day – Oct. 1
Last year all known WS groups were invited to a virtual meeting to discuss the idea of creating a global awareness day for Wolfram Syndrome (WSGAD). The meeting was attended by 7 WS groups from 5 different countries. We have Rare Disease Day which encompasses all rare diseases once year but as we are a […]
Past Events
Unified Care for Diverse Challenges: Crafting National Guidelines for WS from Diagnosis to Care.
Dr. Giulio Frontino and Dr. Maurizio Delvecchio of IRCCS San Raffaele Hospital, Milan, Italy. Unified Care for Diverse Challenges: Crafting National Guidelines for WS from Diagnosis to Care. You can listen to the presentation by following the link provided. https://youtu.be/PssLjWZgsFE
The TREATWolfram trial, Dr. Timothy Barrett’s insightful update!
Head to the link to listen to it now. https://youtu.be/zQ-WrsgEi3o
April 2024 Wolfram Syndrome Virtual Conference Presentations
Dr. Fumihiko Urano’s research updates along with Amylyx Pharmaceuticals’ update on their ongoing clinical trial involving AMX0035. It’s an incredible chance to learn more about the latest advancements in this field. Listen to the updates by clicking on the link provided: https://youtu.be/WCUNVi90EGo
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