The Snow Foundation is leading a global movement of patients, families, doctors, and researchers who work together to improve the lives of everyone affected by Wolfram syndrome.
We are grateful for every donor whose gift allows The Snow Foundation to create hope for those affected by Wolfram syndrome.
We have inspired, funded and helped create:
Wolfram syndrome clinics at Washington University School of Medicine
Faster genetic testing results
The first drug-repurposing clinical trial of Dantrolene Sodium at Washington University School of Medicine
The first Wolfram syndrome community conference, providing patients and their families, clinicians and researchers the rare opportunity to come together to learn about the latest advances in Wolfram syndrome research and treatment
The first Wolfram syndrome international patient-owned registry
An international consortium of scientific research with France and England
A platform through which patients from all over the world can connect with the information and resources they need to live a life of meaning and impact
Even the tallest mountains can be scaled with you at our side!
Your donation will enable us to provide hope for individuals and families, better treatments and a path towards a cure. For more information or to donate, please visit thesnowfoundation.org or text Snowfoundation to 41444.
We are here to help!
The Snow Foundation for Wolfram Syndrome Research provides support, awareness, hope and answers to all those battling Wolfram syndrome.
