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OurStory

Our Story

Read about the Snow Family and their fight to save the life of young Raquel Gebel, granddaughter of Jack Snow and niece of J.T. Snow. Raquel was diagnosed with Wolfram syndrome in late 2010. Read More
RegisPhilbin

Regis Philbin Joins the Snow Foundation Team

Regis Philbin, a Notre Dame alum and fan of Jack Snow, volunteered his time and talent to narrate a short film on The Snow Foundation. Please watch and share this 11-minute film. Read More
Events

Snow Foundation Events

We have a number of special events and fundraisers that are just around the corner. Take a look at our calendar, we’d love to see you at our next outing! Read More
Research

The Evolution of Wolfram Syndrome Research

From the early days of Wolfram syndrome research in 1994 by Dr. Alan Permutt to today, the scientists studying this rare disease are getting closer to clinical trials everyday. Read More
Image of Lauren Gibilisco's class reunion.

Living With Wolfram Syndrome – Lauren Gibilisco

It’s been 10 years since I graduated from High School. We had our 10th year reunion this last weekend. I had to find someone who could help lead me around. I love my mom but going to a reunion with your mom is just not cool, so I asked my friend Meredith to take me. The […]

Business man under the question mark

Three Drug Targets. What is the difference?

We have identified three drug targets for Wolfram syndrome in the past two years. These are MANF, Calpain 2, and IRE1. What is the difference between these three molecules. Here is a short summary. MANF: Enhances survival and proliferation of remaining cells. Caplain 2: Activates cells death signal in Wolfram and Diabetes. So we need […]