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Research

The Evolution of Wolfram Syndrome Research

From the early days of Wolfram syndrome research in 1994 by Dr. Alan Permutt to today, the scientists studying this rare disease are getting closer to clinical trials everyday. Read More
OurStory

Our Story

Read about the Snow Family and their fight to save the life of young Raquel Gebel, granddaughter of Jack Snow and niece of J.T. Snow. Raquel was diagnosed with Wolfram syndrome in late 2010. Read More
RegisPhilbin

Regis Philbin Joins the Snow Foundation Team

Regis Philbin, a Notre Dame alum and fan of Jack Snow, volunteered his time and talent to narrate a short film on The Snow Foundation. Please watch and share this 11-minute film. Read More
Events

Snow Foundation Events

We have a number of special events and fundraisers that are just around the corner. Take a look at our calendar, we’d love to see you at our next outing! Read More
wolfram syndrome independence

Living With Wolfram Syndrome – Adam Zwan

Independence I recently moved out of my parents’ home to live on my own in an apartment all in an effort to gain some independence and self-sufficiency. It has been a start to the next chapter in my life with both pros and cons. It feels good to depend on myself to fulfill everyday tasks […]

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Raise Awareness of Wolfram Syndrome in Asia together with Dr. Barrett

Dr. Barrett and I gave lectures on Wolfram syndrome at the Japan-Korea Diabetes Symposium in Japan this week. Our lectures were successful. I had a chance to speak with Japanese physicians who see patients with Wolfram syndrome. The president of Japanese Diabetes Association, Dr. Tanizawa, and the President of the American Diabetes Association, Dr. Dagogo-Jack, […]

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