http://thesnowfoundation.org/wp-content/uploads/2017/04/snow-foundation-logo-final-w-tagline-300x66.png00Stephanie Snow Gebelhttp://thesnowfoundation.org/wp-content/uploads/2017/04/snow-foundation-logo-final-w-tagline-300x66.pngStephanie Snow Gebel2016-09-14 14:19:482016-09-14 14:19:487th Annual Washington University Wolfram Syndrome Research Clinic Meeting
http://thesnowfoundation.org/wp-content/uploads/2017/04/snow-foundation-logo-final-w-tagline-300x66.png00Stephanie Snow Gebelhttp://thesnowfoundation.org/wp-content/uploads/2017/04/snow-foundation-logo-final-w-tagline-300x66.pngStephanie Snow Gebel2016-08-29 16:13:462017-01-08 15:00:14Kick for Kel Fundraiser Starts Off Strong
Caitlin Fess is a beautiful young lady who has Wolfram syndrome and isn’t afraid to talk about her disease and spread awareness. The Snow Foundation wants to thank Caitlin’s mother Dena, her father Brad, and the rest of the Fess Family for putting together the Elimination Dinner Event. They raised over $6,000 at the event […]
The Snow Foundation’s event Eat Drink Give, on May 14th, 2016, was a special evening which raised awareness and funds for Wolfram Syndrome Research. The festivities began at 6:30pm on the beautiful grounds of Grant’s Farm in the historic Bauernhoff and Carriage house. Attendees enjoyed a wonderful barbecue, cocktails, beer tasting, and great music by Dance […]
On Sunday, March 20, 2016, Team Alejandro participated in The Oakland Running Festival in their 6th Annual Run to Beat Wolfram Syndrome! Team Alejandro ran in support of 12 year-old Alejandro Jimenez (a Wolfram Syndrome Patient) as well as all children and young adults affected by Wolfram Syndrome. They successfully raised $12,374.00 which will help […]
http://thesnowfoundation.org/wp-content/uploads/2017/04/snow-foundation-logo-final-w-tagline-300x66.png00The Snow Foundationhttp://thesnowfoundation.org/wp-content/uploads/2017/04/snow-foundation-logo-final-w-tagline-300x66.pngThe Snow Foundation2016-03-11 04:38:242016-08-27 09:48:40Team Alejandro's 6th Annual Run to Beat Wolfram Syndrome!
ABOUT THE SNOW FOUNDATION
The Snow Foundation is a voice for rare disease, working towards a cure for Wolfram Syndrome and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration.
Rare Diseases...Common Problems
P.O. Box 50224
Clayton, MO 63105