WS Global Patient Registry
Now available in French and Spanish
German, Italian, and Brazilian Portuguese versions are coming soon
We have partnered with the National Organization of Rare Disorders, Inc. “NORD” to implement the first-ever WS global patient-owned registry, a priority in the field of rare disease. Please help us improve patient care, strengthen our voice, and improve the chance for quicker drug development. Support The Snow Foundation’s vision of “a world without Wolfram syndrome”. Sign up today at wsglobalregistry.iamrare.org to receive critical information about treatment, research, resources, and other initiatives. If you have any questions, please email Pat Gibilisco at: pat@thesnowfoundation.org.