WS Global Patient Registry

We have partnered with the National Organization of Rare Disorders, Inc. “NORD” to implement the first-ever WS global patient owned registry, a priority in the field of rare disease. Please help us improve patient care, strengthen our voice, and improve the chance for quicker drug development. Support The Snow Foundation’s vision of “a world without Wolfram syndrome. Sign up today at wsglobalregistry.iamrare.org to receive critical information about treatment, research, resources, and other initiatives. If you have any questions, please email Pat Gibilisco at: .

Sign up for the Wolfram Syndrome Global Patient Registry

Sign Up