Welcome Emily Kohler

We are pleased to welcome Emily Kohler, who will assist with the Wolfram syndrome Global Facebook administration and assume some of the responsibilities previously held by Pat Gibilisco. She is 27 years old and from Media, Pennsylvania. Emily was diagnosed with Wolfram syndrome on December 20, 2021, at the age of 23. Although the past few years have presented challenges, she is actively learning to manage and adapt to her circumstances. Ever since she first suspected she had Wolfram syndrome, she’s found a deep sense of purpose in living with it, hoping to make a positive impact and assist others. She looks forward to supporting others and continuing the legacy established by Pat Gibilisco.