Washington University School of Medicine 2018 Wolfram Research Clinic Update

Yes, we’re still waiting! No word yet on the final determination of funding for the 2018 Wolfram Research Clinic. But, as we said, we are proceeding with the planning. We wanted to share with you the final dates of the clinic and a couple of changes from previous clinics.

The official clinic dates are Wed., 7/11/18 thru Wed., 7/18/18. The way it will work is that we’ll have two groups thus two clinics; Clinic 1 and Clinic 2. Clinic 1 will be held Wed., 7/11/18 thru Sun., 7/15/18. Clinic 2 will be held Sat., 7/14/18 thru Wed., 7/18/18. Testing will take place on week days and the Wolfram Group meeting (formerly known as the “Saturday Session”) will be held on Saturday, 7/14/18. The change most frequently requested by the families on the post-clinic evaluations is more time built in to the schedule for families to socialize. In an effort to meet this request, we are working on setting up family socials at least one night during each clinic and one after the Wolfram Group meeting on Saturday. It will take a bit to find a space that fits our group but we want you to know that we heard your request and we’re working on it!

Dates to remember:

Clinic 1 – Wed., 7/11/18 – Sat., 7/14/18 Wolfram Group meeting & Family Social – Sat. 7/14

Clinic 2 – Sat., 7/14/18 – Wed., 7/18/18

If you have a preference of attending Clinic 1 or Clinic 2 please let Samantha know sooner rather than later!

Need Help? For questions or requests regarding the Wolfram Syndrome Research Clinic please contact the WFS Research Clinic Coord., Samantha Ranck, MSW at 314.362.6514 or rancks@npg.wustl.edu