Tamara Hershey, PhD
Washington University School of Medicine
Drs Hershey, Marshall and the rest of the Wolfram Research Clinic team have been busy analyzing data that has already been collected and trying to plan for the next round of data collection during the current pandemic. We hope to start remote data collection (surveys, zoom interviews) this month, with in person ‘mini-clinics’ once the pandemic-related restrictions on travel and research are over. Samantha Ranck is coordinating this effort. Our primary goal is that everyone stays safe!
Some of the analyses we have done have been published in the past year and address the smell and taste differences, sleep problems and brain structure alterations in people with Wolfram syndrome. We hope that this information is helpful for families and physicians in understanding, monitoring and treating some of these symptoms.
Tamara Hershey, PhD