Starting in January 2013 I was asked by a gentleman to help him run his academy teaching Taekwondo. Being physically active and enjoying exercise as much as I do, I did not blink before I agreed to help out. I was told that class members would range from 3 to 16 years old and that I would be using the art of Taekwondo to teach self defense as well as improve behavioral aspects within the community, at home, and at school.
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Tag Archive for: adam zwan
Sacrifice it or never experience it?
Early in life I began having to face several limitations and make many sacrifices due to Wolfram Syndrome. With the diagnosis of Type I diabetes at 7 years old I was asked to limit and sacrifice enriched white flour and sugars in order to manage glucose levels. Staying away from sugary and or starchy foods, like pasta, candy, cookies, and rice, I gained a passion for high fibrous fruits and vegetables along with drinking over a gallon of water each day. As time went on I allowed initiating a network of friends and getting involved in intimate relationships to be placed on the back burner so I could manage my health through nutrition and physical activity.
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Some people are glorified for an invention or for a remarkable breakthrough in science. However, others make their mark in history by being diagnosed with a rare illness that shortens life expectancy by half. My place in history start in 1987 on September 18, living life as a healthy young man only to find health beginning to spiral downward in 1994. The diagnosis of Type I diabetes was only the first mile marker in my marathon known as Wolfram Syndrome. As one of 18 patients with Wolfram in the United States I found myself obligated to beat the statistics and surpass the life expectancy of 31 years old by controlling my diabetes and staying as physically active as I possibly could. I took a realistic look at myself and said that Wolfram Syndrome is the hand that I was dealt in life and it is my responsibility to make the best of what I have.
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About the Snow Foundation
The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration.
Rare Diseases…Common Problems
P.O. Box 50224 Clayton, MO 63105
(402) 694-1354
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