Move Forward and Keep Fighting the Fight

Barclay and I are moving forward! As parents you want to do everything possible to provide the best life for your children.

Easier said than done when one of them has a life threatening disease.  If you pray hard enough for the strength to just move forward, somehow, the good Lord will provide!

This past weekend Barclay took Raquel to Best Buy and bought her a TV for her bedroom.  He mounted it on the wall next to her bed and with it’s swinging arm,  she can move it right in front of her face.  It has been at least nine months since she has watched TV.  After her dad installed it, her eyes light up and she was so excited to sit and enjoy the TV like everyone else.  She just wants to be like everyone else.

This week I  had a meeting at school with about 12 other individuals from Raquel’s school to discuss her progress. It was a bit overwhelming to walk into a conference room and see all these people sitting around a huge conference table to discuss the needs of you child.  I am very grateful that Raquel attends such a great school district and I am even more grateful that Barclay and I are accepting the fact that Raquel has special needs.  Her needs keep us fighting; fighting for change, and fighting for a CURE!