Just Waiting Around – By Adam Zwan

When looking at the past 12 months I have noticed all the patient waiting I have taken part in. It seems that the time of waiting is the hardest part of anything. Whether it is waiting on a medical cure, an employment decision, or an everyday event, waiting to see how things turn out is the greatest challenge.

In my days, I am forced to wait and see what I can accomplish due to available transportation. Each day involves waiting for a ride or waiting to see if anyone is available to give me a ride to complete tasks and or chores, like work, the gym, grocery store etc.  The waiting for transportation also involves waiting to receive phone call that transportation is not available or has been canceled.

In addition, I have been applying for full time job opportunities everywhere from Charlotte, NC to Portland, OR and the hard truth of waiting is no different. The process of searching followed by the detailed effort of applying is all finished with a long term of waiting on email messages and phone calls. After questions are answered and an interview takes place comes the unbearable wait to hear of the final decision. It is all the nature of the business but telling myself that does not make things easier.

Similarly, waiting for a successful cure for Wolfram Syndrome presents the same restless wait. It is said that a cure, which stops the progression of Wolfram Syndrome, is the first step. The next step is taking action to repair damages that have occurred due to the breakdown of my central nervous system. While waiting to see how the possible cure turns out, I cannot help but dream of living without diabetes and kidney failure.  Also, the possibility of a cure creates optimistic thoughts of obtaining 20/20 vision and being able to drive again. These thoughts and dreams only make the time of waiting seem like forever. All in all, the patient waiting continues until conclusions are discovered.