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Past Events
Team Alejandro’s 6th Annual Run to Beat Wolfram Syndrome!
On Sunday, March 20, 2016, Team Alejandro participated in The Oakland Running Festival in their 6th Annual Run to Beat Wolfram Syndrome! Team Alejandro ran in support of 12 year-old Alejandro Jimenez (a Wolfram Syndrome Patient) as well as all children and young adults affected by Wolfram Syndrome. They successfully raised $12,374.00 which will help […]
Wolfram Syndrome Support and Information Day in the UK
The Snow Foundation was represented at the 3rd Annual Wolfram Syndrome Support and Information Day in the UK in November. The conference had numerous speakers ranging from specialized service, therapeutics, developing treatments, urology, psychology and neurology, to name a few. Dr. Fumihiko Urano gave a presentation on patient based therapeutics and Stephanie Snow Gebel spoke about […]
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