McCarthy Building Company’s annual Dan Licari Memorial Fishing Tournament raised $13,445.00 for the Snow Foundation to support the Bieser family in their fight against Wolfram Syndrome.. THANK YOU!!!!
2024 Support Drive, could you help?
This year, we are funding four projects worth almost $400,000.
Please donate today to support our community. Your gift will make a significant difference and help us achieve our goal.
For More Information: https://thesnowfoundation.org/2024-support-drive-could-you-help/
https://thesnowfoundation.org/donate/
Join the virtual conference The Snow Foundation and Wolfram Syndrome UK will host on April 13th.The conference will feature four presentations starting at 2:00 pm (BST). Details about the program and registration links will be forthcoming. This bi-annual event aims to educate everyone about the latest research on Wolfram Syndrome.
The Snow Foundation is grateful for the support it has received from people around the world. We would like to express our appreciation to Markus Klasenar for putting us on the map in Germany. Thanks to their fundraising efforts, we have raised 2,650 euros for our Quest for A Cure!
Mark your calendar! Dr. Fumihiko Urano to Present on Rare Disease Day at NIH 2024
Dr. Urano received an invitation to present his research on Wolfram Syndrome at the Rare Disease Day event held at the National Institutes of Health on February 29, at 2:20 Eastern Time. This event is widely regarded as one of the most prestigious gatherings for rare diseases, offering an excellent platform for us to raise awareness about Wolfram Syndrome. You can participate by watching his presentation remotely. The link to access it: https://ncats.nih.gov/news-events/events/rdd
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