Tamara Hershey was recently featured on the Washington University School of Medicine website for her studies in how fluctuations in glucose levels can influence the brain . As well as her work as a neuroscientist, she devotes much of her time studying Wolfram syndrome. “Endocrinologists usually are interested in Wolfram syndrome because it’s a genetic form […]
Wolfram Moms Join Forces to Create “Snow White Fellowship” In the fall of 2013, Stephanie Snow Gebel and Beth White decided to join forces and create “The Snow White Fellowship” at Washington University School of Medicine. The Jack & J.T. Snow Scientific Research Foundation and The Ellie White Foundation for Rare Genetic Disorders decided to join […]
Last year my sister came up with a great idea for a Christmas present. It’s hard to get something for someone who is blind. She got tickets for us to go to Mannheim Steamroller. I thought this was a great idea because I could hear the music and they were going to play some Christmas […]
When looking at the past 12 months I have noticed all the patient waiting I have taken part in. It seems that the time of waiting is the hardest part of anything. Whether it is waiting on a medical cure, an employment decision, or an everyday event, waiting to see how things turn out is the greatest […]
I love to exercise and it gives me something to do during the day. So much so that last Wednesday I did 4000 leg lifts throughout the day. By Thursday my legs were hurting very badly and my mom said it was probably from doing too much exercise. She told me no exercise for the […]
As you know, living with Wolfram syndrome poses many challenges for me, including doing my chores. With my vision impaired, I’ve had to come up with different ways of doing things and I thought I’d share them with you. I start with making my bed. My bedspread has two raised rope designs going vertical. This […]
Hello Everyone, The last few weeks have been fun and entertaining. It started out on St. Patrick’s Day. I am 75% Irish and our family has always celebrated it. When I went to work on St. Patrick’s Day I was dressed as a leprechaun. My clothing was green and I wore a green hat. I […]
By Dr. Bess Marshall All of the people working on the Wolfram studies at Washington University are grateful every day for the support of the Snow Foundation and all of the other groups that support our work. The Washington University Wolfram Study group is continuing to work on analyzing the data that we have and […]
The Ups and Downs of Vision Loss My week turned out to be quite eventful. I am going to give you the ups and downs of vision loss. It all started out when I knocked some sense into myself. Inside the house I do not use my cane. I went to go turn off the […]
Hi Everyone, I have had a couple of busy weeks. It started out with a trip to Cabela’s. My father is an avid fisherman and he and I snuck out of the house to go there. When we go there I had to use the restroom. I was not familiar with this restroom. As I […]
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