A couple of weeks ago I was asked if one thing could be healed on me, what would it be? I thought about it for a while and decided it would be my hearing. I asked my mom what she thought and she answered blindness of course. She couldn’t believe I said my hearing. My […]
Moving out on my own in April 2015 is a chance for me to increase my confidence and begin experiencing more of life’s treasures. On the other hand, there are some health risks and family worries due to my taking a chance on my own. I tell myself to be thankful to have such a […]
I had a few weeks where my blood sugars were unstable. If I ate something that would make me go high, I was still low. This happened for about 2 weeks. Now the bad thing about the timing of low blood sugars is that I’d probably be able to have a lot of ice-cream since […]
Bowl For A Good Cause Join Alex’s Army for a fundraiser with bowling, raffles and an auction on April 26th from from noon to 4pm at the Concord Bowl. Proceeds benefit The Snow Foundation for Wolfram syndrome research. $20 per person includes hot dog or hamburger, chips with a drink and the option to bowl. (Additional […]
Saturday, October 31, 2015 Strathalbyn Farms Club 9:00 a.m. The Inaugural Snow Foundation “Shoot For A Cure” Sporting Clay Competition will be held at the exclusive Strathalbyn Farm Club on Saturday, October 31, 2015. The event will include range practice and a 15-station sporting clay competition followed by lunch, a live auction and awards ceremony. All […]
My whole life has revolved around health status and trying to control the progression of Wolfram syndrome. Even though the harder I try, the more difficult it seems to get. I decided to take a big chance and try living on my own. It has been made clear to me that everyone around me worries […]
Hello, Hola, Tung, Ciao, Bon Jour! Recently I was contacted by someone who works with me. Her nephew’s girlfriend needed to write about someone with a disability. Of course she thought of me. Who better to pick from then someone with more than one disability? I received a phone call from her and she introduced […]
How to Avoid Trigger Foods Portion distortion is one of the many reasons for the rapid increase in obesity among individuals in the United States. One category of food that people tend to splurge on is called trigger food. Trigger foods are those that individuals go to when they are multi-tasking. For example, while watching […]
Members of the St. Louis community came out to support the Snow Foundation on Saturday, May 30th for a 5K Run to help raise money for Wolfram syndrome research. The day was kicked off by St. Louis Cardinals very own FredBird who started the race. Attendees enjoyed Dewey’s pizza, Kona Ice and two gigantic bounce houses. […]
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