About The Snow Foundation
This author has not written his bio yet.
But we are proud to say that The Snow Foundation contributed 92 entries already.
Entries by The Snow Foundation
Tenth High School Reunion – Lauren Gibilisco
It’s been 10 years since I graduated from High School. We had our 10th year reunion this last weekend. I had to find someone who could help lead me around. I love my mom but going to a reunion with your mom is just not cool, so I asked my friend Meredith to take me. The […]
San Francisco Giants Recognize The Snow Foundation
On Tuesday, July 7th at AT&T park, the San Francisco Giants celebrated “Snow Foundation Night” to raise awareness of its mission to find a cure for rare disease, Wolfram syndrome. Prior to the 7:15 p.m. match up between the reigning World Series Champs and the New York Mets, former Giants first baseman and six time Gold Glove winner, […]
Dog sitting and Volunteering – Lauren Gibilisco
For once I can say that I have had a busy couple of weeks. It was really nice. My sister took a vacation to Cancun. We got to dog sit Emmy, my sister’s dog, for a whole week. I have written about her before so I know you know her. It was fun to have […]
New Beginnings – Adam Zwan
Wolfram Syndrome is a rapid aging and deterioration of the central nervous system. The damages consist of diabetes, chronic kidney failure, deafness, and blindness; it’s not anything to be ashamed of, it’s just not something worth bragging about on the first date.
Independence – Adam Zwan
I recently moved out of my parents’ home to live on my own in an apartment all in an effort to gain some independence and self-sufficiency. It has been a start to the next chapter in my life with both pros and cons. It feels good to depend on myself to fulfill everyday tasks but […]
2nd Annual Snowman Classic Cocktail Competition
July 8, 2015 – 2nd Annual Snowman Classic Cocktail Competition 6:00 p.m. – 11:00 p.m. Omni Hotels and Resorts San Francisco California
Get Fit Expo 2015
Head to Gold’s Gym in St. Peters on May 16th from 11am – 3pm. There will be fitness activities, booths from vendors from the St. Louis area, healthy food and lots of fun – all for a good cause, The Snow Foundation.
Adventures in driving – Lauren Gibilisco
When I was 13 I saw a low vision specialist. He was trying different devices on me to get my vision a little better. Then he told me “you will never ever drive.” Well that about told me what my future was going to be like. But I was going to prove the doctor wrong. […]
About the Snow Foundation
The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration.
Rare Diseases…Common Problems
P.O. Box 50224 Clayton, MO 63105
(402) 694-1354
You must be logged in to post a comment.