Newsletters
Snow Foundation May 2018 Newsletter
A friend and former boss of mine told me when I started The Snow Foundation, that I can only ever take one step at a time. I keep this always in mind. As I reflect on the journey that God placed in my heart nearly eight years ago, I believe…
Snow Foundation January 2018 Newsletter
The Snow Foundation (TSF) has the ability to change the outcome of Wolfram Syndrome and save patients around the world. For the last seven years, TSF has been faithful to its mission, with a proven track record of working toward a cure for WS. TSF has accomplished more on a…
Snow Foundation September 2017 Newsletter
I am a prisoner to hope when it comes to this disease. From day one of my daughter's diagnosis, God placed a big dream in my heart — to find a cure for Wolfram Syndrome (WS). Since I started this foundation in 2012, it has not been just chance that…
Snow Foundation July 2017 Newsletter
I saw a picture on Facebook the other day that was taken back in 2011 at our very first event. It was of me, my brother, J.T., and my sweet Raquel, who was only six at the time. That event was held at the Edward Jones Dome, and it was…
Snow Foundation April 2017 Newsletter
The Snow Foundation is a global voice for rare disease, working toward a cure for Wolfram Syndrome (WS), and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration. In seven short years, we have brought worldwide recognition to a disease that was previously unknown.
Snow Foundation March 2017 Newsletter
Every time I reach into my refrigerator and see Raquel's big orange medicine bottle, I am in awe.
Snow Foundation February 2017 Newsletter
In the world of rare disease, I believe in the power of collaboration and the minimization of egos, especially when it comes to saving patients. The late Dr. Alan Permutt made a significant contribution to medical science in 1998 with the discovery of the Wolfram Syndrome (WS) gene.
Snow Foundation January 2017 Newsletter
Many people believe they don't have what it takes to make a difference. The Snow Foundation (TSF) has never believed that! We have always believed in hope, and where there is hope there is life. TSF would like to thank two dedicated "change-makers" whose fundraising efforts have helped Dr. Urano…
December 2016 Newsletter
Our mission from day one has been to support Wolfram Syndrome research and to develop therapies for those suffering from it. Our foundation is built on a grassroots model and has been helping connect people around the world and uniting them to change the outcome of a disease. Less than…
About the Snow Foundation
The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration.
Rare Diseases…Common Problems
P.O. Box 50224
Clayton, MO 63105
(636) 448-4134