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Can you imagine living a life with insulin-dependent diabetes, blindness, deafness, loss of sense of smell, problems with balance and coordination, muscle spasms and seizures, urinary tract problems, and irregular breathing. This is the experience of more than 30,000 patients around the world living with Wolfram syndrome.
Despite the poor prognosis, Wolfram syndrome patients around the globe now have hope for better treatment options and services that will allow them to live a life of meaning and impact, all because of the work supported through The Snow Foundation.
This past year, the Snow Foundation hosted their first annual Wolfram syndrome community conference, providing patients and their families, clinicians and researchers from around the world the rare opportunity to come together to learn about the latest advances in Wolfram syndrome research and treatment.
It is the Foundation’s “Never Lose Hope” attitude that has taken this rare disease, on which virtually no clinical research was being done, to supporting clinical trials that show promise of slowing its progression.
Join us in raising $50,000 this holiday season. When you give by December 31st your tax-deductible gift will support breakthroughs in scientific research that not only impact Wolfram syndrome patients but millions of people suffering from diabetes and other neurological diseases.
To watch a child, suffer with diabetes, and eventually lose their vision and hearing is unimaginable, but to know that they are deteriorating because of a lack of funding for critical research and support services is truly heartbreaking.
Please help give WS patients and their families hope by supporting The Snow Foundation’s mission today.
The time to help them is now. The future of these patients is in your hands.
Please visit our website http://thesnowfoundation.org/donate/ to make your gift or text snow to 71-777
With best wishes for a happy holiday,
The Snow Foundation
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