Newsletters
The Snow Foundation 2025 Newsletter
As we enter 2025, we’re excited to keep growing our partnership with the wonderful Wolfram syndrome community—researchers, scientists, patients, and families. This year is brimming with new opportunities to engage, evolve, and amplify our impact together. Let’s celebrate a remarkable year ahead, working hand in hand to create meaningful change.
February 2024 Newsletter
Never Lose Hope! The Snow Foundation Confidently Creates Hope Through Collaboration. Hey there! Did you know that The Snow Foundation is working tirelessly to find a cure for Wolfram syndrome? We believe that your support can go a long way in helping us achieve our goal. Let’s unite and catch…
June 2023 Newsletter
Never Lose Hope! 8th International Wolfram Syndrome Symposium The Snow Foundation and Wolfram Syndrome UK hosted the 8th International Wolfram Syndrome Symposium. The symposium was held at the Woodlands Park Hotel in Surrey England from April 16-18. There were over 30 researchers and scientist who attended. For a full list…
2022 Year End Newsletter
Never Lose Hope! Wishes for 2022 OUR mission has and always will be to advocate for patients with rare disease and fund research focused on finding treatments and cures for rare disease. Every year our goal is to be more impactful than the previous year, so I ask you to…
Snow Foundation February 2022 Newsletter
Never Lose Hope! Wishes for 2022 Wishing our WS community a happy and healthy New Year. With your support, we can continue to lead a global movement of patients, families, doctors, and researchers who are working together to improve the lives of everyone affected by Wolfram syndrome. Hoping this…
Never Stop Climbing
Oh, the mountains you’ve helped us climb. Celebrating 10 years of strength and unity.
To Our Wolfram Syndrome Community
It has certainly been a challenging year, but despite the difficulties, The Snow Foundation has continued to work tirelessly on your behalf. Physicians and scientists from all over the world are advancing our cause, and here is a brief research update:
It’s Giving Tuesday! Support the cause by making a donation!
Support the cause by making a donation! View this email in your browser Can you imagine living a life with insulin-dependent diabetes, blindness, deafness, loss of sense of smell, problems with balance and coordination, muscle spasms and seizures, urinary tract problems, and irregular breathing. This is the experience of more…
Snow Foundation April 2019 Newsletter
The spring season is full of transformations, and so is The Snow Foundation. We are ready to take on 2019 by providing critical programs and services that directly improve the lives of patients and their families as well as making significant investments in promising Wolfram syndrome research.
About the Snow Foundation
The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration.
Rare Diseases…Common Problems
P.O. Box 50224
Clayton, MO 63105
(636) 448-4134