Gianna Aiello was born profoundly deaf and received cochlear implants as a toddler. Later, after failing her Kindergarten vision screening and following what seemed like hundreds of doctor appointments, tests, and hours of research, Gianna’s parents, Gina and Carl received devastating news — Gianna had Wolfram Syndrome.
Gianna is no stranger to overcoming obstacles and adapting to the curve balls life has thrown her. She also has Celiac Disease and multiple food allergies, which have required adjustments in diet. While her strong self-advocacy skills have helped her in the classroom setting, due to her hearing and visual impairments and ADHD, school is still a struggle for her.
Thankfully, Gianna has an Individualized Education Program (IEP), and has supportive teachers, and receives multiple services for vision, hearing, and speech. She uses a sound field and FM system in the classroom and has begun using a 360-degree video magnifier that helps her see things from distance and also magnifies print on worksheets and books. With the help of private tutors and an after school speech therapist, Gianna is able to continue with her education. Gianna’s struggle propels the Snow Foundation forward to continue the search for a cure and treatment for Wolfram Syndrome.