Washington University 2019 Wolfram Research Clinic Update

Washington-University-School-of-MedicineWASHINGTON UNIVERSITY’S

2019 WOLFRAM RESEARCH CLINIC UPDATE

Wait no more – the 2019 WU Wolfram Research Clinic planning is underway! We’re sure many of you have lots of questions and hopefully some of them will be answered here. If not, you can always contact Samantha directly. Her contact information is below.

Due to the number of participants enrolled in the clinic and an effort to make the clinic days more manageable, we will be dividing the clinic into two sessions. The official dates for the clinic are as follows:

Group 1
 Arrival: Tuesday, 7/9/19

Clinic: Wednesday, 7/10/19 – Friday, 7/12/19

Group 2
 Arrival: Sunday, 7/14/19

Clinic: Monday, 7/15/19 – Wednesday, 7/17/19

Scientific Session (TBD) Saturday, 7/13/19

Family Dinner TBD

We are still working out the details of the Scientific Session and the Family Dinner(s) and we will share that information with you as soon as it is finalized. Until then, these are the clinic dates. It is important at this time that you let Samantha know if you have a preference to attend as part of Group 1 or Group 2. Please keep in mind that another person or family cannot communicate your preference for you. Samantha must hear from you directly as to which session you’d like to attend. If you do not have a preference, that works too. You will then be assigned to a group once all preferences are in. The deadline for reserving your slot in a particular group is Jan. 31, 2019. That being said, it is important to get your preference in as soon as possible as we are trying to split the groups evenly which means that your preferred group could reach capacity prior to you stating your preference.

 

Need Help? For questions or requests regarding the Wolfram Syndrome Research Clinic please contact the WFS Research Clinic Coord., Samantha Ranck, MSW at 314.362.6514 or rancks@npg.wustl.edu