Living With Wolfram Syndrome
Maybe or Maybe Not
Originally, I was told that Vocational Rehabilitation could provide financial assistance towards a street legal golf cart. When I first heard these words I was exhilarated to think that independent transportation is a possibility. I am still not full time at the wellness and rehabilitation center I work for so financial assistance is needed to acquire a street legal golf cart. It was explained that I must obtain a quote for a golf cart, add it to my file, Vocational Rehabilitation would purchase the golf cart, and then Vocational Rehabilitation would receive a tax rebate. It was all planned out and I was feeling optimistic that a Wolfram Patient, like me, could increase level of independence. Although, I try my best to be cautiously optimistic by saying that it may happen or it may not.
The next stop I was making was at the Vocational Rehabilitation office to add the golf cart quote to my existing file. While in the office a close review of the vehicle purchase policy took place and it was discovered that only 15% of the total vehicle value (down payment) could be offered. This information seemed logical but was and still is a slight stretch for me financially. Secondly, it was discovered that a street legal golf cart requires registration, tags, auto insurance, and a valid license. Obviously, the golf cart scenario has put on hold. It is times like these when I tell myself to “count my blessing, cope with the hand I was dealt, and keep pressing on.”
On a lighter note, my next eye appointment is on July 10th and it will provide me with details as to where my vision stands. I know that rapid aging and detonation of my central nervous system (Wolfram Syndrome) is a tough hand to me dealt in life but I do my best to stay optimistic and keep a realistic outlook in life. It’s one of my favorite clichés: “It may happen and it may not.”