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Past Events

3rd Annual Run to Beat Wolfram Syndrome

Team Alejandro is Back! The friends and family of 9-year old Alejandro Jimenez have formed “Team Alejandro” for the 3rd year in a row to “Run to Beat Wolfram Syndrome.” On March 24, 2013, Team Alejandro will participate in The Oakland Running Festival in honor of 9-year old Alejandro, Raquel, and all of the children […]

4th Annual Run to Beat Wolfram Syndrome

TEAM ALEJANDRO IS BACK! The friends and family of 10-year old Alejandro Jimenez have formed “Team Alejandro” for the 4th year in a row to “Run to Beat Wolfram Syndrome.” On March 23, 2014, Team Alejandro will participate in The Oakland Running Festival in honor of 10-year old Alejandro, Raquel Gebel, and all of the children affected by Wolfram syndrome. Please […]

2nd Annual Adult Easter Egg Hunt

A great time was had by all at the 2nd Annual Adult Easter Egg Hunt on Saturday, April 5, 2014.  Guests enjoyed an evening hosted by KMOV’s Steve Savard and St. Louis Rams Head Coach Jeff Fisher.  Over 3000 eggs filled with Merbs chocolates and fabulous prizes were distributed across the grounds of Grant’s Farm […]

The Snowman Classic Cocktail Competition Supports Wolfram Syndrome Research

J.T. Snow leads fight against genetic disorder By Shayna Rubin HAMLIN MANSION — Giants right fielder Hunter Pence went straight from a sweep at the hands of the Colorado Rockies to swanky Pacific Heights to partake in another competition Sunday night. Pence joined former Giant J.T. Snow at the historic Hamlin Mansion for the Snowman Classic: An iron chef-like cocktail competition to raise money […]

Team Ian Supports Wolfram Syndrome Research

Kim Wamback and Team Ian Take On The Rev3 Triathlon To Support Wolfram Syndrome Research Kim Wamback, an experienced marathoner and triathlete, participated in her first iron distance (2.4 mile swim, 112 mile bike, and 26.2 mile run) Rev3 Triathlon on September 7, 2014 in Sandusky, OH. Kim ran in honor of her 13 year old […]