Upcoming Events

Nothing Found

Sorry, no posts matched your criteria

Past Events

Team Alejandro’s 6th Annual Run to Beat Wolfram Syndrome!

On Sunday, March 20, 2016, Team Alejandro participated in The Oakland Running Festival in their 6th Annual Run to Beat Wolfram Syndrome! Team Alejandro ran in support of 12 year-old Alejandro Jimenez (a Wolfram Syndrome Patient) as well as all children and young adults affected by Wolfram Syndrome.  They successfully raised $12,374.00 which will help […]

Wolfram Syndrome Support and Information Day in the UK

The Snow Foundation was represented at the  3rd Annual Wolfram Syndrome Support and Information Day in the UK in November.   The conference had numerous speakers ranging from specialized service, therapeutics, developing treatments, urology, psychology and neurology, to name a few.  Dr. Fumihiko Urano gave a presentation on patient based therapeutics and Stephanie Snow Gebel spoke about […]

Gianna’s Vision of Hope Fundraiser

San Francisco Giants Recognize The Snow Foundation

On Tuesday, July 7th at AT&T park, the San Francisco Giants celebrated “Snow Foundation Night” to raise awareness of its mission to find a cure for rare disease, Wolfram syndrome.  Prior to the 7:15 p.m. match up between the reigning World Series Champs and the New York Mets, former Giants first baseman and six time Gold Glove winner, […]

Wolfram Night at Busch Stadium

To purchase a sponsorship or on-field experience, call Stephanie Snow Gebel at 636-448-4134