San Francisco Giants Recognize The Snow Foundation

Image of JT Snow and members of the Snow Foundation BoardOn Tuesday, July 7th at AT&T park, the San Francisco Giants celebrated “Snow Foundation Night” to raise awareness of its mission to find a cure for rare disease, Wolfram syndrome.  Prior to the 7:15 p.m. match up between the reigning World Series Champs and the New York Mets, former Giants first baseman and six time Gold Glove winner, J.T. Snow addressed the crowd on the important mission of the Snow Foundation.

Wolfram Night at Busch Stadium

To purchase a sponsorship or on-field experience, call Stephanie Snow Gebel at 636-448-4134

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2nd Annual Snowman Classic Cocktail Competition

July 8, 2015 – 2nd Annual Snowman Classic
Cocktail Competition
6:00 p.m. – 11:00 p.m.
Omni Hotels and Resorts 
San Francisco California

Coach Fisher Softball Game 2015

Get Fit Expo 2015

Get Fit Expo

Head to Gold’s Gym in St. Peters on May 16th from 11am – 3pm. There will be fitness activities, booths from vendors from the St. Louis area, healthy food and lots of fun – all for a good cause, The Snow Foundation.

Crazy Bowl For Alex’s Army

Bowl For A Good Cause

Join Alex’s Army for a fundraiser with bowling, raffles and an auction on April 26th from from noon to 4pm at the Concord Bowl. Proceeds benefit The Snow Foundation for Wolfram syndrome research. $20 per person includes hot dog or hamburger, chips with a drink and the option to bowl. (Additional concessions will be available for purchase.)

To register please contact Amber Bieser at amberbzr@gmail.com

Crazy Bowl Fundraiser for Wolfram syndrome

Shoot For a Cure

Saturday, October 31, 2015
Strathalbyn Farms Club
9:00 a.m.

The Inaugural Snow Foundation “Shoot For A Cure” Sporting Clay Competition will be held at the exclusive Strathalbyn Farm Club on Saturday, October 31, 2015. The event will include range practice and a 15-station sporting clay competition followed by lunch, a live auction and awards ceremony. All proceeds from the event will benefit The Snow Foundation, a nonprofit dedicated to raising awareness and funding for a rare and deadly form of Diabetes called Wolfram syndrome.

“Shoot for a Cure” Sponsorship Levels and Benefits

Tournament Presenting Sponsor

$15,000

  • Four Sporting Clay Shooting Teams (4 per team)
  • One Course Station Sponsorship
  • Company logo prominently displayed on all event signage
  • Company logo included on all tournament materials
  • Company mentions in event press release and with any media mentions. Media partners currently include: KMOV, Channel 4, 101 ESPN and News Talk 97.1
  • Company name and sponsorship level recognized at awards ceremony
  • Company logo on The Jack and J.T. Snow Scientific Research Foundation website

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Reception Sponsor

$10,000

  • Three Sporting Clay Shooting Teams (4 per team)
  • Company logo prominently displayed on all event signage

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Lunch Sponsor

$5,000

  • Two Sporting Clay Shooting Team (4 per team)
  • Company logo prominently displayed on all event signage

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Course Station Sponsor (14 available)

$2,500

  • One Sporting Clay Shooting Team (4 per team)
  • Company logo prominently displayed on (1) course station signage

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Individual Attendee (Non-Shooting)

$100

Admission to the Clubhouse during the Shoot Out.  Lunch, cocktail reception and fire pit area included.

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Can’t attend the event but want to support the foundation?  Make a donation by clicking HERE.

Night of Superstars

Run for Wolfram 5K

Members of the St. Louis community came out to support the Snow Foundation on Saturday, May 30th for a 5K Run to help raise money for Wolfram syndrome research.  The day was kicked off by St. Louis Cardinals very own FredBird who started the race. Attendees enjoyed Dewey’s pizza, Kona Ice and two gigantic bounce houses.  A huge thanks for our sponsors, volunteers and runners!  The race raised nearly $8,000 which will go towards mouse trials beginning in June.

The results of the 5K race can be viewed at:

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5th Annual Run to Beat Wolfram Syndrome

Run to beat Wolfram syndrome

Alejandro “getting a lift” from his fellow teammates.

On Sunday, March 22, 2015 Team Alejandro participated in the Oakland Running Festival in the 5TH Annual Run to Beat Wolfram Syndrome! The team raised over $10,000 for Wolfram syndrome research.

Team Alejandro ran in support of 11 year-old Alejandro and of all children affected by Wolfram Syndrome. Donations went to support research at Washington University School of Medicine which is fast advancing potential treatments to slow the progression of the disease and to ultimately find a cure.

Thanks to all that supported the team for the 5th year in a row!