Entries by The Snow Foundation
Living With Wolfram Syndrome – Lauren Gibilisco
It’s been 10 years since I graduated from High School. We had our 10th year reunion this last weekend. I had to find someone who could help lead me around. I love my mom but going to a reunion with your mom is just not cool, so I asked my friend Meredith to take me. The […]
San Francisco Giants Recognize The Snow Foundation
On Tuesday, July 7th at AT&T park, the San Francisco Giants celebrated “Snow Foundation Night” to raise awareness of its mission to find a cure for rare disease, Wolfram syndrome. Prior to the 7:15 p.m. match up between the reigning World Series Champs and the New York Mets, former Giants first baseman and six time Gold Glove winner, […]
Living With Wolfram Syndrome – Lauren Gibilisco
For once I can say that I have had a busy couple of weeks. It was really nice. My sister took a vacation to Cancun. We got to dog sit Emmy, my sister’s dog, for a whole week. I have written about her before so I know you know her. It was fun to have […]
Living With Wolfram Syndrome – Adam Zwan
New Beginnings Wolfram Syndrome is a rapid aging and deterioration of the central nervous system. The damages consist of diabetes, chronic kidney failure, deafness, and blindness; it’s not anything to be ashamed of, it’s just not something worth bragging about on the first date. Throughout life I have experienced my fair share of health issues, […]
Living With Wolfram Syndrome – Adam Zwan
Independence I recently moved out of my parents’ home to live on my own in an apartment all in an effort to gain some independence and self-sufficiency. It has been a start to the next chapter in my life with both pros and cons. It feels good to depend on myself to fulfill everyday tasks […]
2nd Annual Snowman Classic Cocktail Competition
July 8, 2015 – 2nd Annual Snowman Classic Cocktail Competition 6:00 p.m. – 11:00 p.m. Omni Hotels and Resorts San Francisco California
Get Fit Expo 2015
Head to Gold’s Gym in St. Peters on May 16th from 11am – 3pm. There will be fitness activities, booths from vendors from the St. Louis area, healthy food and lots of fun – all for a good cause, The Snow Foundation.
Living With Wolfram Syndrome – Lauren Gibilisco
When I was 13 I saw a low vision specialist. He was trying different devices on me to get my vision a little better. Then he told me “you will never ever drive.” Well that about told me what my future was going to be like. But I was going to prove the doctor wrong. […]
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