2016 “Eat Drink Give” The Snow Foundation Annual Fundraiser

Eat Drink Give Fundraiser
The Snow Foundation’s event Eat Drink Give, on May 14th, 2016, was a special evening which raised awareness and funds for Wolfram Syndrome Research. The festivities began at 6:30pm on the beautiful grounds of Grant’s Farm in the historic Bauernhoff and Carriage house. Attendees enjoyed a wonderful barbecue, cocktails, beer tasting, and great music by Dance Floor Riot. KMOV Channel 4 Steve Savard was the emcee for the evening and interviewed Raquel Gebel (11) and Lauren Gibilisco (29) who both suffer from Wolfram Syndrome.  The event was a success, raising close to $90,000, which will be used to find a life changing treatment for those who suffer from Wolfram Syndrome.

 

Team Alejandro’s 6th Annual Run to Beat Wolfram Syndrome!

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On Sunday, March 20, 2016, Team Alejandro participated in The Oakland Running Festival in their 6th Annual Run to Beat Wolfram Syndrome! Team Alejandro ran in support of 12 year-old Alejandro Jimenez (a Wolfram Syndrome Patient) as well as all children and young adults affected by Wolfram Syndrome.  They successfully raised $12,374.00 which will help The Snow Foundation increase awareness of Wolfram Syndrome and find a cure.