2016 “Eat Drink Give” The Snow Foundation Annual Fundraiser

Eat Drink Give Fundraiser
The Snow Foundation’s event Eat Drink Give, on May 14th, 2016, was a special evening which raised awareness and funds for Wolfram Syndrome Research. The festivities began at 6:30pm on the beautiful grounds of Grant’s Farm in the historic Bauernhoff and Carriage house. Attendees enjoyed a wonderful barbecue, cocktails, beer tasting, and great music by Dance Floor Riot. KMOV Channel 4 Steve Savard was the emcee for the evening and interviewed Raquel Gebel (11) and Lauren Gibilisco (29) who both suffer from Wolfram Syndrome.  The event was a success, raising close to $90,000, which will be used to find a life changing treatment for those who suffer from Wolfram Syndrome.


Team Alejandro’s 6th Annual Run to Beat Wolfram Syndrome!


On Sunday, March 20, 2016, Team Alejandro participated in The Oakland Running Festival in their 6th Annual Run to Beat Wolfram Syndrome! Team Alejandro ran in support of 12 year-old Alejandro Jimenez (a Wolfram Syndrome Patient) as well as all children and young adults affected by Wolfram Syndrome.  They successfully raised $12,374.00 which will help The Snow Foundation increase awareness of Wolfram Syndrome and find a cure.